It’s easy to ignore things you don’t know anything about. Obstetric fistula is one of those things. But it’s a devastating childbirth injury to women who experience it, usually fatal to unborn babies (90 per cent of cases end in stillbirth) and – here’s the encouraging news – not only treatable but preventable. 

Obstetric fistula is a hole in the birth canal caused by protracted, obstructed labour in the absence of timely medical care, leaving women to leak urine and faeces. Left untreated, it can lead to infection, disease and infertility. Sentenced to a life of misery, stigma and isolation – husbands and families abandon them, communities ostracize them, employment opportunities vanish – they can suffer from mental health issues and deepening poverty.

The injury has all but disappeared in rich countries but persists in poorer  countries with inadequate maternal health care – an estimated 500,000 women and girls live with the condition. Young bodies not ready for childbirth in cases of child marriage or unintended pregnancy are especially vulnerable. Women can develop fistula because they cannot afford transportation to a health facility or the services of a skilled birth attendant like a midwife. 

The injury can be prevented by sexual and reproductive health care, access to contraception and access to skilled birth attendants and high-quality emergency obstetric care. With its many partners, UNFPA leads the Campaign to End Fistula, which works in more than 55 countries on prevention, treatment and rehabilitation efforts. It can be treated with reconstructive surgery, though many women and girls don’t know about treatment, can’t access it or can’t afford it. UNFPA has supported more than 120,000 surgical repairs, including for Beatriz Sebastião, pictured above © UNFPA Mozambique.

UN Member States adopted a resolution to end fistula by 2030. To that end, the theme of this year’s observance is “End Fistula Now: Invest in Quality Healthcare, Empower Communities!" Obstetric fistula is a development and public health issue, but it’s also a human rights issue, one that grants everyone the right to health and a life of dignity.

When is the International Day to End Obstetric Fistula?

Every year on 23 May, the International Day to End Obstetric Fistula is observed by the international community as a way to rally action, commitment and support to ending obstetric fistula.

What is the history behind the day?

In December 2012, 167 countries co-sponsored a biannual resolution of the United Nations General Assembly that called on all Member States to support UNFPA and its partners in the Campaign to End Fistula. In addition, the UNFPA-backed resolution acknowledged the plight of millions of women and girls living with obstetric fistula by designating 23 May as the International Day to End Obstetric Fistula, first observed in 2013.

Subsequent resolutions have called for the dramatic acceleration of actions and commitment to end obstetric fistula by 2030, reinforcing the need for urgent efforts and greater investment to address and improve sexual and reproductive, maternal, newborn and child health, as well as to eliminate the root causes of fistula, such as poverty, inequalities and failure to ensure education, economic opportunity, gender equality and human rights for all.

Why is the day important?

A sign of global social injustice and inequity stemming from weak health and social protection systems, obstetric fistula is driven by poverty, gender and socioeconomic inequality, lack of education, child marriage and early/adolescent childbearing, among other things. Women and girls at risk of or living with fistula face economic, social, cultural and logistical barriers to care and to survival, further deepening pre-existing inequalities.

The condition is generally and often treatable, but more critically, it is largely preventable – developed countries have all but eliminated obstetric fistula. The same should be true for developing countries. Everyone deserves a life of dignity, and the day serves as a reminder that we cannot ignore such a promise.

Ntchisi, Malawi-Although Marita Vula was in pain, she tried as much as possible to ignore it. The 28-year-old was experiencing her first labour pains. Marita had waited for this moment and couldn’t wait to a be a mother.

“When I got married, I stayed for three years without a child,” says Marita from Kambola village in Ntchisi. “In our culture, one is expected to have a child as soon as they get married.”

However, try as they could, Marita couldn’t get pregnant. This displeased her in-laws who took every opportunity to remind her that they wanted grandchildren.

On this particular day, Marita’s husband was tending their maize field. When he heard the news that her wife was in labour, he hurried back home.  Since the hospital was too far, he decided to take Marita to a traditional birth attendant to help her deliver.

“That was the only option we had that time,” recalls Marita, adding, “I didn’t see the labor coming that soon and hadn’t planned to travel to the hospital.”

Access to maternal services still a challenge

For hours, the traditional birth attendant tried to help Marita to deliver but without luck.  In desperation, the traditional birth attendant prepared some herbs, which she said would help ‘push the baby out’. Instead of helping her give birth, the herbs made Marita lose a lot of blood.

“My husband became worried and he rushed to the nearby village to hire a car,” she said. “When he came back, I had passed out. The next thing I remember was in a hospital. The look on my husband face told me that something terrible had happened.”

Marita arrived at the hospital semi-conscious. Medical staff had to perform a caesarian section to save both mother and child. Unfortunately, the child didn’t make it. Her husband had to break the sad news to her.

“This was devastating news. I was looking forward to holding my child in my hands,” says Marita.

Although Marita recovered well, she could no longer control her urine and she kept wetting herself. The prolonged labour caused her to develop a hole between the birth canal and the bladder. As a result, she developed obstetric fistula.

“When I returned home, my husband’s attitude towards me changed,” she says. “He started sleeping in his own bed.”

A ray of hope for women with fistula

For eight months, nothing changed. Eventually, her husband disappeared only for Marita to learn that he had married in another village.

“I was okay with him sleeping on another bed,” she says. “But running away from me was the last thing I expected from him. He was responsible for the pregnancy and I couldn’t have developed fistula if it wasn’t for him.”

With time, Marita soon learnt to accept her condition. One day, as she was listening to the radio, she had a testimony of a woman who was successfully treated of fistula. She listened with interest and learnt that the operation was done at Bwaila Fistula Centre in Lilongwe.

Marita saved enough money for transport to seek for treatment at the Centre. The waiting list was long. She stayed at the Centre for a month and finally got repaired of fistula.

Helping fistula survivors reintegrate in society

“The support I received from the fistula centre transformed my life,” says Marita, who is now a fistula ambassador in her community. “I have moved from being a social outcast to become one of the community respected tailors.”

As one way to help her reintegrate in her community, the Bwaila Fistula Centre with support from the European Union funded Spotlight Initiative, trained Marita and other 48 fistula ambassadors in tailoring. The ambassadors’, including Marita, were each given a sewing machine to help them establish tailoring shops for income generation.

Today, Marita is a well-known tailor in her community. She sews’ dresses, suits and all type of uniforms. In a good month, Marita makes about US$80. And when its wedding season, her earnings goes up to more than US$100 per month, she says.

“I am saving money to buy iron sheets for my house,” she says. “I have lived a difficult life and now just want to make the best of what I have.”

In 2021, UNFPA successfully lobbied for the re-opening of the Bwaila Fistula Centre after it was converted into a Covid-19 isolation centre. The closing of the Centre inconvenienced hundreds of women suffering from fistula from getting treatment. Since re-opening, the Centre with support from the Spotlight Initiative, has successfully repaired 90 women suffering from fistula.

Joseph Scott, Communication Analyst

The Ministry for Foreign Affairs of Iceland and UNFPA have signed a $7 million landmark agreement to help end obstetric fistula in Sierra Leone and improve the lives of the women and girls suffering from this preventable condition. Sierra Leone has one of the highest lifetime risks of pregnancy-related mortality and morbidity, including obstetric fistula. 

Obstetric fistula is one of the most serious and tragic childbirth injuries. Women suffering from obstetric fistula are often stigmatized and isolated from their families and communities. They face significant socioeconomic challenges and often do not have access to social-economic development opportunities in their communities. 

“Obstetric fistula is a neglected health and human rights tragedy that affects the most vulnerable women and girls. It is embedded in gender inequalities and social norms and constitutes an impediment to women and girls’ empowerment.” says UNFPA West and Central Africa Regional Director Argentina Matavel-Piccin.

In recent years, Iceland has been supporting the Government of Sierra Leone in its efforts to prevent and treat obstetric fistula, with the aim to improve access to quality maternal health services to prevent and manage obstetric fistula. This new landmark agreement will provide medium- to long-term support to end obstetric fistula in the country, and is part of the global Campaign to End Fistula launched by UNFPA and its partners in 2003. 

The five-year programme will take a comprehensive and integrated approach to obstetric fistula, by addressing the gender and other social norms, and health systems challenges contributing to the occurrence of obstetric fistula. The new partnership will strengthen the referral system for surgery and social reintegration initiatives, and will focus on documenting best practices to help shape other existing and future programmes.

By the term of the programme, the capacity of the country’s health system will be strengthened to improve adolescent girls’ and women’s access to integrated sexual and reproductive health services for prevention, treatment and social reintegration of obstetric fistula. 

“Iceland has been a firm supporter of the Global Campaign to End Fistula for more than a decade – both financially through UNFPA and through our advocacy efforts for sexual and reproductive health and rights at the international level,” said Thórdís Kolbrún Reykfjörd Gylfadóttir, Minister for Foreign Affairs and International Development Cooperation of Iceland. “We are very proud to be part of this programme and work together with UNFPA and the Government of Sierra Leone toward the elimination of obstetric fistula in the country.”

“Our long-standing partnership with the Government of Iceland plays a critical role in supporting UNFPA’s ongoing campaign to end obstetric fistula in Sierra Leone and globally, and in restoring women’s dignity worldwide,” said UNFPA’s Matavel-Piccin. 

"I'm capable of everything" - An Obstetric Fistula Survivor's Journey in Mozambique #EndFistula

MOCUBA, ZAMBEZIA PROVINCE, Mozambique – Beatriz Sebastião suffered in silence. She had no friends in the neighborhood or at school. When she went to church, she sat alone. When she went to the river, other women mocked her before leaving to bathe elsewhere. 

She had become pregnant at 15 and because she lived far from the hospital, planned to give birth at home. After three days of labour, her parents had to raise money to rent a motorcycle to take her to the hospital, where she delivered a stillborn child. She developed an obstetric fistula, and when she became pregnant again, that child, too, was stillborn. But the fistula caused urine to leak, and the resulting smell isolated her from nearly everyone for the next six years. 

A treatable, preventable condition

Obstetric fistula is a hole between the birth canal and bladder or rectum, which can cause incontinence, leading to social ostracization and attendant psychological issues like depression. The treatable and largely preventable condition is the result of prolonged, obstructed labour with no access to skilled care, often resulting in stillbirth. Girls whose bodies are too young to deliver a baby are particularly vulnerable. 

Every year, there are an estimated 2,500 reported fistula cases in Mozambique, of the 50,000 to 100,000 cases globally. Since 2018, in partnership with the Government of Mozambique, UNFPA has supported the repair of more than 2,300 fistulas, recruited 28 fistula surgeons, expanded a real-time monitoring system of cases to 25 health facilities, and educated thousands of people about the causes and consequences of the condition. 

A life transformed

Ms. Sebastião, now 28, had once sung gospel and six years after developing the fistula, received a fateful invitation to perform at a youth meeting. Encouraged by an uncle, she went, “but as always, I was discriminated against. I was humiliated. People talked. Because of the looks, I stayed there shrunken.” She stayed alone in a tent because no one would share space with her. 

Then the youth coordinator, who also worked at a hospital, sought her out when she skipped practice, claiming illness. Finally, she admitted she had “a disease that made me pee involuntarily,” which is when she learned that what she had could be cured through surgery. 

Ms. Sebastião was one of the rare fistula survivors whose family and husband did not abandon her. With their support, she had the operation and, for the first time in years, awoke without having wet the bed. “I don’t know how to express what was in my heart,” she recalled. “I had emotions I don’t know how to describe.” 

She was no longer the person others fled from. She could wear skirts again, instead of covering herself with multiple layers of cloth. She started a small grocery business, something unthinkable before, and became an activist, holding chats with women in various communities to discuss fistula. She learned “to love that Beatriz from the past again,” she said. “When I had the disease, I was nothing. Now, I am capable of everything, able to fight for my well-being and raise my self-esteem.”

The contagious joy of a woman with a repaired fistula

Albertina Luis is a radio journalist and activist in Mocuba District. When her activism focused on domestic violence, she would meet women hiding behind their houses or in the cassava trees – not from abusive husbands but because they had obstetric fistulas. Ms. Luis underwent reproductive sexual health training and learned more.  

Now, through regular broadcasts, she reduces shame and stigma surrounding obstetric fistula and lets women know how to prevent it, including avoiding forced, premature marriage and unintended pregnancy, and where to seek medical treatment. “Dignity means being valued,” Ms. Luis, 50, said. “The greatest wealth is health. In addition to being a right, it is power. I am freeing women who have lost their dignity for a long time.” 

Dr. Armando Rafael, a fistula surgeon at Mocuba Rural Hospital, who operated on Ms. Sebastião, finds his work rewarding, knowing the suffering and marginalization patients have endured. “The contagious joy of a woman when her fistula is repaired is incomparable,” he said. 

During Ms. Sebastião’s long exile, women at the river taunted her with the cruel nickname “Lake Bethesda,” a reference to the Bible's Pool of Bethesda that never ran dry. For her, the name takes on a different significance now: in Biblical lore, the pool was a place where miracles happened and people were healed.

The most vulnerable women

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BOUAKÉ, Côte d'Ivoire – When Blandine was pregnant, she didn't go to the hospital for regular prenatal check-ups. On the day she gave birth, she delayed in going to the health centre. Her doctor told her that's why the birth had complications which resulted in her developing obstetric fistula.